SICKLE CELL FAMILY ACTION GROUP
Cianna's Smile Sickle Cell Family Action Group
One of our main goals is to reduce isolation experienced by those affected by Sickle Cell. By offering days out, support and advice we can help families manage the continual life challenges faced by those with Sickle Cell.
The group meets every other month and takes families out who have a parent and/or child with Sickle Cell. We often go to places like the cinema, bowling, museums etc.
To become a member of the Cianna's Smile Sickle Cell Action Group please contact us or download a form from the information page.
Our Advocacy training program is to provide you with the knowledge, skills and understanding to become a Sickle Cell Advocate. This will enable you to attend events and act as a Cianna's Smile representative, gain in depth knowledge of the condition and to improve public speaking skills. Anyone can take part if they would like to become a Cianna's Smile advocate.
FAMILY FUN CLUB
One of the key focuses for us an organisation is to raise awareness of Sickle Cell. One of the main issues surrounding the condition is the lack of empathy towards sufferers and the lack of understanding.
Education is key to making the changes desperately needed to help those who suffer from Sickle Cell Diseases.
As part of our support program we run days out for families affected by Sickle Cell living in the Thames Valley area. Every 3 months we take up to 25 people out for a family friendly activity. To register please contact us.
REFERRALS TO OTHER LOCAL SERVICES
As we are a small charity we rely heavily on donations and any monies raised through fundraising events to allow us to run and complete the much needed work that we do. If you would like to organise a fundraising event to raise money for Cianna's Smile we would love to hear form you.
It is extremely important for us to have the support and backing of our community, to spread awareness and to educate the public about Sickle Cell is a crucial part of our mission to make a positive impact on the lives of people affected by Sickle Cell.
REDUCE ISOLATION FOR THOSE AFFECTED BY SICKLE CELL
Many sufferers of Sickle Cell face the risk of developing mental health issues due to the isolation caused by many serious illnesses. Children with SCD who had a history of repeated hospitalisation are at an increased risk of developing behavioral problems. Psychological counseling, social support, and correct pain management could minimise these behavioral consequences. Art therapy is a positive way for people suffering from serious illnesses to express themselves and to manage thoughts and feelings.
We have developed a good relationship with many local organisations to enable us to refer service users if we are unable to help with a certain issue.