MISSION AND HISTORY
Cianna’s Smile aims to offer support to families affected by Sickle Cell Anaemia.
I started Cianna's Smile after my daughter Cianna was diagnosed with Sickle Cell when she was just a few days old. This inspired us to try and support and educate others about Sickle Cell.
When we were told Cianna had sickle cell I had no idea what the future would hold for us, but so far I am nothing less than proud at how strong and brave Cianna and others with Sickle Cell are.
The first year of Cianna's life we spent hours seeking advice and researching information from every resource available, but it was not easily accessible. The only people we could talk to about it were the health care professionals looking after her. We had many unanswered questions. How she would feel when she had a crisis? How many times would it affect her? What medications would she be on and what complications could they cause? Would it affect her day-to-day life? Would we need to care for her differently?Could she die from it? What would it be like to live with sickle cell? What is the severity of it?
Some of these questions could not be answered by the health care professionals and when looking for answers we found nothing. There was no one locally who could help and no form of support. This is when we decided to start Cianna's Smile and help support others facing similar challenges to ourselves.
Dr Emmanuel Essah